GOOD GEAR...

We've been really lucky to come across different gear over the past couple of years that have made raising a baby while in a wheelchair so much easier (well actually, it's stuff that I think any mom could use!). We have even purchased a few new things that I think are going to be even better than some of the solutions we came up with the first time around. Here are some of our favorites (hope they help you, too!)...

We invested in the Bugaboo Chameleon as our big stroller. It was rediculously expensive, but for our situation, worth every penny. With the carseat adaptor, I was able to easily get Caroline into and out of the car from my chair from the get-go. The telescoping handle was a godsend so that I wasn't bumping my face into the stroller as I wheeled my chair. It's easy to take apart and fold (you have to take the seat off to collapse it, which some people hate, but from a wheelchair perspective, it makes it less cumbersome), and is really versatile. The only other stroller I would consider if I were to purchase something new for this baby(which we're not) is the Peg Perego Skate, which has alot of the same features, with the addition of a really cool tilting handlebar that would make it even easier for me to push than the Bugaboo.

You've seen me post about this one before - we bought the Quinny Zapp as our lightweight stroller after Caroline got bigger. It's so easy for me to fold and lift into the car, and is very easy for me to push from my wheelchair. The only drawback is that you can't really hang much onto the handlebars (although there's a decent-sized storage basket underneath).

The Fisher Price Space Saver high chair was a great find for us. Not only does it not take up alot of room in our dining room or kitchen, but I also found it so much easier to pull up to in my chair when trying to put Caroline into and out of it. We looked at the Peg Perego Prima Pappa (as well as others that had adjustable heights), but this one just seemed to suit our needs just a bit better.

The Skip Hop diaper bags were quite the find, too. We first had - and eventually outgrew - the Duo. We upgraded to the Via Messenger, which is great because it is a bit roomier and has the flap that contains everything. I love this bag because it hangs so easily onto the back of my chair, and kind of blends in because it's black. Steve likes it too because it doesn't look too girlie.

I saw someone in Ben and Jerry's one night when I was pregnant with Caroline, and she had the Peanut Shell sling. She raved about it, and it was for good reason. It is so easy to pull on and off (not buckles to adjust or attach), so it's easy for everyone to use - even people who may have limited mobility in their hands. Although I mainly used my Baby Bjorn when we were out and about, this was a great way for me to easily have my hands free when we were in the house (which is especially important when you have to wheel a chair). Just throw it on and go!

This is a new purchase for baby #2 - the silver and black M1 Carrier from Lascal. I decided to find another option for my Baby Bjorn Original, which I liked but had a few complaints about. The M1 has much better back support than the BB, which is really important for all moms but for wheelers in particular because back and shoulder strain are some of the main causes of additional disability with in this community. Additionally, the weight limit for the M1 is several pounds higher, which means that baby #2 can use it for a bit longer, making it easier for her to stay on my lap when we are out and about. I'm excited to see if this was worth the money - I'll keep you posted!

At our house these days, you will find several of these Kiddie Guard retractable gates from Regal + Lager. They were more expensive than the standard pressure or swing-out gates, but so much easier for me to manage from my chair. They fit wide doorways and are simple to operate once you get used to them. They are also really unobtrusive, which means that we didn't have to sacrifice precious doorway width (with a chair, every inch counts!).

Caroline loved this Papasan Cradle Swing from Fisher Price, and so did I - for several reasons. The main feature that made my life easier is that the seat swivels, which means that I was able to turn it to face sideways and pull the seat onto my lap to put her into and get her out of it. My balance isn't great, so this was crucial for me. She just loved it because it was so snuggly!

When I had Caroline, I told my mom that I needed to invent a way for me to easily pick her up off the floor after tummy time, etc., and thought that maybe I could adapt a small duffle bag to scoop her up. Turns out the people at Lillebaby did just that, with the Eurotote. This contraption apparently has many functions (travel bed, alternative carrier, etc.), but for me, the main use would be to hoist the baby up from the floor without having to put her in her car seat, climb into my chair, pick up the car seat, take her out, blah blah blah (which is how I had to do it with Caroline).

I have had a link to this on my blog for awhile now. It's a car seat carrying strap from Flying Falcon. While I have a really hard time believing that my walking friends would really like this thing (I have visions of strained necks and sore hips), for someone in a chair, it's the best thing ever. I am easily able to keep the infant seat on my lap with no issues because of this strap. It's so nice to be able to have my hands free to wheel, open doors, etc.

So that's that for now - I promise to pass along any new finds as I come across them. Hopefully, if you or someone you know is in a chair, you'll especially benefit from this post. For those of you who might not be in a chair but are having a baby, maybe these products will be a good fit for you, too!

THE FINAL COUNTDOWN...

With less than two weeks to go until the arrival of "Baby Tummy" (as Caroline continues to call her), we are in full-swing trying to get things as ready as we can. I head in for a scheduled c-section on the 18th, which is fast-approaching! It still seems a bit strange to me that we actually have anything left to do. When Caroline was born, we were ready to go weeks before she actually arrived - I think I had myself convinced that if everything was in place then we would totally know what we were doing once this little foreign creature moved into our home full-time.

This time, I feel like we know better - the confidence we have regarding how to actually keep this little person alive and thriving makes it seem just a bit less important to make sure that every throw pillow is in place in the glider and that every room decoration is arranged just so. Combine confidence with the fact that we have a toddler running about and you now know why the painter is just now scheduled to come paint the nursery on Friday - exactly 1 1/2 weeks before the baby will be born (if she decides not to make her presence known any earlier than that)! Oh well - it will all fall into place. Having Caroline taught me that...

From the perspective of my wheelchair, I think I've been pretty lucky with this pregnancy. With Caroline, she was arriving in the late summer, which meant I had to endure alot of heat and humidity in the weeks leading up to her birth. My body was incredibly swollen, which is common in pregnancy but particularly of issue for women who are in chairs. Limited mobility means limited ways to relieve the fluid retention. My ankles and legs were huge towards the end, and I was so swollen all over that I developed carpal tunnel syndrome in my hands and wrists and couldn't feel my fingers a good deal of the time. Not only was it really uncomfortable; it also began to affect my ability to use my hands - writing by hand became almost impossible (I even had to be incredibly tacky and type my thank-you notes for my baby shower), transferring into my chair was really painful, and taking my chair apart to put it into the car was harder and harder every day. The perk to all of this, however, was that when I finally delivered, I lost so much water weight right away that I was well on my way to my pre-pregnancy weight - gotta look at the bright side, right?!

My issues with swelling, and specifically the carpal tunnel syndrome, made me initially reluctant to even have a second baby. Thankfully, however, this journey has been different! While I was initially nervous to have a winter baby, the toll this pregnancy has taken on my body has been far less dramatic. I've had swelling recently in my legs and feet, but nothing that I haven't felt I couldn't handle. And to my relief, the carpal tunnel syndrome that I dreaded has been non-existent. I am so glad that things have gone differently this time around, especially with Caroline to keep up with. It's also really nice to feel like we know what we're doing - we've got alot of the little tricks figured out where a newborn is concerned. Now if anyone could hand me an owner's manual for my toddler, we will be all set!

MY NEW FAVORITE PARK...

Caroline and her good friend Madison catch a ride on a swing together!

Yesterday, we went to an awesome new park with a group of our little (and big) friends. It's not too far from where we live, in one of my friend's neighborhoods. The park is brand-new, with a fully wheelchair-accessible playground (complete with a rubberized surface!), swings for kids of all sizes and abilities, a picnic area, a Bank Shot basketball court where people in wheelchairs and on their feet can play together, tennis courts, and a dog park, as well as walking paths and open fields. It's truly a place where all people can go to have a fun day outside without feeling limited by any challenges they might face.

The coolest part is that it's dedicated to an amazing boy named Mattie Stepanek, whose life was sadly cut short by a rare form of muscular dystrophy. Though he didn't live to see adulthood, Mattie did more to make a positive mark on our world than most people who live to see eighty. Mattie spent his time here spreading a simple message of peace and friendship that only a child's eyes could see or voice could speak, much of which was compiled into several poetry books that he wrote. He inspired so many to live their lives to the fullest while focusing on what was most important, and although he was wise beyond his years, he had a way of sharing his message in a manner that all could understand.

When the park was dedicated this past Saturday, a statue of Mattie in his wheelchair - with his service dog standing at his side - was officially unveiled within a peace garden that's adjacent to the playground. The ceremony was attended by everyone from people in his family, to people who live in the area, to dignitaries and news crews, to Oprah Winfrey, who became a friend of Mattie's several years ago.

His mom, who also has muscular dystrophy, lives in a house across the street from the park. I couldn't stop myself from glancing over there from time to time when we visited the park yesterday, wondering what she thinks of having such an amazing place being named for her beloved son just outside her front door. Being a mother myself, I can only imagine that such a sight is all too bittersweet - a beautiful but painfully constant reminder that her child is no longer here with her.

When we arrived at the park and first went over to look at the statue, I got a bit teary-eyed myself - not because I knew Mattie personally, but because of the effect he has had on my own outlook on life by encouraging everyone to "always play after every storm." Caroline, meanwhile, just noticed that he looked like he was in "Mommy's wheelchair!" and wanted to pet his dog. Then we went off to play with our friends and take in the beautiful day, just as Mattie would have wanted all of us to do. How amazing is it that a simple day at the park could so easily be the most fitting tribute to such a special boy?

OUR FUTURE MICHELLE WIE!

We are really lucky because our new home is in a neighborhood that's part of a country club, and a membership came with the purchase of our house - a major selling point, especially since we were adding quite a bit to Steve's commute to work every day! This afternoon, Steve got home a bit early, so we decided to take Caroline out to the putting green for the first time.

She used my left-handed Jack Nicklaus Golden Cub clubs, which I totally use all the time (NOT - although I definitely plan to try to get more into it so that I don't become a golf widow). They were actually almost short enough for her, since Steve had the clever idea to get me a set of kids' clubs a few years ago so that I could go to the driving range with him and hit right from my chair. Caroline had a great time trying to putt, rolling the balls back to Daddy when putted to her, and occasionally chucking them from one end of the green to the other. It was too cute, so I just had to post some pictures. Enjoy!

THE PINK TOTEBAG IS GETTING A LITTLE BIT "PINK"ER - AND AT JUST THE RIGHT TIME...

Caroline's future sister!!!

When we went for our "big" ultrasound this week, we got some really wonderful news! In addition to the baby looking healthy, with all its parts well formed and apparently in good working order (thank God!), we also found out that we will be adding another little girl to our family. Caroline will be getting a sister, which is something I have always dreamt of for her. I have 3 younger sisters myself, and there is truly nothing that can compare to that kind of bond. I know that if the baby had been a boy, I would have been so happy that things were as they should be (not to mention - Steve would have been thrilled to have a son and is feeling a bit outnumbered in our house these days). Caroline would have been a terrific big sister to her little brother, but I can't even put into words how I feel now that I know that she is getting a gift that I feel so blessed to be giving her - that of a sister.

This wonderful news couldn't have come at a better time for us. This time of year is bittersweet for me, as it has been for an unbelievable 19 years. While September is typically filled with the sights, sounds, and smells of impending Fall and all the newness and change that it brings, it also happens to be the month when I sustained my spinal cord injury. In particular, today - September 28 - is my anniversary. When I was 13, I had a spinal fusion for scoliosis. During surgery, a number of complications arose and a portion of my spinal cord was deprived of oxygen. When the doctors realized that the monitoring they had been doing to prevent just such an issue was not working properly, they removed the rods that had been placed along my spine, but the damage had been done, and I was paralyzed from roughly the belly button down.

Recovery from something like this takes a long time, but my yardstick for measuring mine hasn't ever really focused on the physical side of things. Sure, it's important to work to regain as much movement as you can to optimize your situation, and I spent a great deal of time in physical therapy over the years to heal. However, for me, the emotional journey that this experience has set out for me has been a far more difficult path to navigate at times. The anxiety and anticipation of all life's wonderful rights of passage, like dating, high school dances, starting college, getting married, or having a baby to name but a few, has always been compounded by the fact that I have this extra baggage in the form of four wheels.

It is a journey that I would not be able to face day in and day out without the support of my own sisters (along with the rest of my family and friends). This makes me value the future relationship that Caroline will have with hers so much. I know that when I was injured, they too were hurt and had to begin their own healing processes. I have the physical scars from my surgery and its aftermath, but the three of them also lost alot on the day I got hurt. They have always been there to help pick me up when I've fallen, both emotionally and physically. They help me turn limits into opportunities, and for that I am so grateful. I only hope that I return the favor to them in my own way. I am so lucky to have them, and I am a better person because of them.

My sisters and me

Like a really bad college roommate (not that I've ever had that!), my injury and I have reached an uneasy tolerance of each other while at the same time maintaining an extremely close proximity. We get in each other's way at times, and are constantly having to find ways to coexist. My chair and the limits it attempts to place on me are what I deal with every day, although I like to think that I push back hard to not let it stop me or my family from living our lives. I have to say that at this point in my life, I have reached an appreciation for the experience that I've been through, as it has helped me to learn things about myself that I don't think I ever would have learned otherwise. That isn't to say that I would even wish it on my worst enemy, but at the very least I can frame what happened to me in some sort of positive light.

Anyway, tonight, I just wanted to give a little shout-out to all the sisters (and future sisters) out there. They get us through some tough times, and for me especially, I had the opportunity on this anniversary to not spend too much time being sad about what happened so long ago, but instead focus on the future and all the hope and promise that it brings...

WE HAVE A WINNER!

As some of you may have read awhile back, we've been going through the great debate of selecting a new stroller that will fit my changing needs in terms of Caroline's size and my wheelchair. This past weekend, we made our choice.

For the past 20 months, our trusty Bugaboo Chameleon has been fabulous, and I would recommend it to anyone, especially those of us who use wheelchairs. Although it is exorbitantly expensive, it has truly been worth every penny for us, as both Steve and I can push it easily. Although it's big, it comes apart into two pieces so that it's simple for me to put into my car. It has one telescoping handlebar instead of two fixed push handles, which is perfect for someone in a wheelchair who has to repeatedly switch hands to push the chair and the stroller. We were also able to buy an adaptor so that we could snap our infant seat right to it when Caroline was little. Most importantly, it's really sturdy and turns easily, which takes some of the strain off of my wrists - a good thing, since wheelchair users often develop chronic wrist issues (and I already have some pain from time to time). It doesn't hurt that it's a really cute stroller, either!

just three of the several set-up options for the fabulous Bugaboo Chameleon

Sadly, some issues evolved over time for us. The major drawback for the Chameleon from a wheelchair standpoint is its weight - the stroller itself weighs a bit over 20 pounds, which is fine with an infant but begins to get heavy as a baby grows. For me, this meant that, despite coming up with a system that attached the stroller to my chair with some large carabiners from a hiking store, I wasn't able to take Caroline out for walks in our hilly neighborhood in her stroller for too many months before she got too big and I had to begin using my Baby Bjorn with her on my lap. The hills, plus the weight of me, the wheelchair, the stroller, and Caroline, got to be too much for my "little stroller that could."

The Bugaboo still worked amazingly well when we were out and about (and continues to be a favorite purchase of ours), but our needs were changing as Caroline got more mobile. I needed something simple, quick, light, and easy to manage so that she and I wouldn't begin to feel trapped close to home as Caroline wanted to spend less time in her stroller while out running errands. We had to come up with the next solution to the ever-evolving challenge of managing a toddler from a wheelchair.

My hunt for our perfect next solution has been exhaustive. I've been to Buy Buy Baby and Great Beginnings umpteen times to test drive, lift, and collapse different models. I've scoured the internet and watched You-Tube videos of people using their strollers to see how easily they maneuver. I continually referred back to this great comparison chart to look at the features I knew we needed. I also talked to friends who are in wheelchairs and looked at some of the (limited) resources that are out there for adapted types of strollers. It's been a somewhat long and frustrating process, since we have to put even more thought into this kind of purchase than the average parent.

It finally came down to two strollers - the new Bugaboo Bee and the Quinny Zapp. Both strollers come from good brands who know their stuff in terms of building something sturdy and maneuverable, which is what kept bringing me back to them on my test drives. Their turning radiuses are quite tight, meaning that I could zip them around store displays and through crowds easily. They are both lighter than my Chameleon (the Zapp is the lighter of the two), and come with canopies and a small underseat bag.

Bugaboo Bee vs. Quinny Zapp

The major draw of the Bee for me is that it has the same telescoping handlebar as its big sister Chameleon, while the Zapp has two push handles (with a bar that spans between them that I could use to push, although it isn't padded). It also has a fully reclining seat and available adaptors with which to attach our infant carrier. The major draw for the Zapp is that it collapses so easily - just push two buttons on either side of the seat to fold the seat down, and then push a button underneath the seat with your hand or foot and it folds into a very small unit that's easy to handle. The Bee was much trickier for me, requiring more leg strength than I have and being set up to require to0 much contorting of my arms to fold with my hands. The Zapp doesn't officially recline, but sits at a bit of an angle so that if Caroline catnaps, it wouldn't be the end of the world. It's also less expensive. The decision was made.

We picked up our brand-new black Quinny Zapp this weekend and immediately took it out for a test-drive. It did well in the mall and was pretty easy to push up ramps (we'll have to see how it handles an incline on neighborhood walks). It was easy for me to lift Caroline into and out of, and maneuvered exceptionally well. When we collapsed it to put in the trunk of our wagon, we had plenty of room for my wheelchair, which was nice because with the Chameleon, Steve had to play a game of "Tetris" every time he tried to fit the pieces of the chair and stroller in the back of the car. Two drawbacks are that it gets tipsy if you hang too much on the handles, and that the underseat bag isn't too spacious. I ended up carrying stuff on my lap, which wasn't too bad. I'm used to feeling like a pack-mule these days with a toddler in tow.

Check out this video of how the Quinny Zapp works:

**Be sure to scroll down to the bottom of the page to turn off the music player before playing the video!**

I've also broken down and bought a baby harness for those times when Caroline just wants O-U-T of the stroller so that I can keep tabs on her. Although I hate to put her in it, sometimes you just gotta do what you gotta do, right? I keep it in my bag and will have it when we're out with the stroller. The real stroller test for us will be a trip to Ft. Myer's Beach, Florida for my cousin Brian's wedding in May. I am excited to see how it handles at the airport - it comes with a travel bag that I think we'll pack it into before gate checking it. I will keep everyone posted!

Being in a wheelchair means that you have to constantly be on your toes, thinking about better ways to do the everyday things that many people take for granted. I've gotten used to this over the past almost 19 years that I've been in a chair. While it's not always fun to have to think about this stuff, I am always happy when I feel like I can pass along a new way to do something to others who might be in my situation. Hopefully then, they won't have to reinvent the wheel (no pun intended!). Maybe something I stumble across can help out my walking friends, too!